This website is for young people with FASD.
It has information about FASD and things that can help.
It was created in the UK working with a very experienced team including medical professionals, teachers, parents and most importantly an advisory team of adults and young people with FASD.
National FASD developed this website as part of a “Me and My FASD toolkit that is a central part of a partnership project between Seashell and National FASD.
National FASD developed and holds the copyright on these materials and website, which will be the basis of a new 3-day training for practitioners working with young people to help them take on board their diagnosis and strategies that can help (to be piloted in February 2021). Other parts of the project include co-development of “Best Practice in FASD Training Guide” and “FASD: Preferred UK Language Guide,” and a one-day training, “Introduction to Supporting Children and Young People with FASD.”
The website uses the most recent information and resources available in the UK.
Everything here draws on the experience of individuals affected by FASD, including strategies for making living with FASD easier.
The team who brought this together are excited, we believe we have created something special.
And we’re just getting started.
Now we want to hear from you!
Please let us know if you find this website useful and/or if you have any concerns or suggestions for improvement.
Complete our survey here.
When we all work together like we did with this site, we believe bright tomorrows are possible.
A comment about the merch shop:
Our adults and young adults committee all requested the site provide merch. All merch is sold at cost plus shipping and handling. We tried to put lots of items on here that can be printed at home for free.de
The National Organisation for FASD (formerly NOFAS-UK) is dedicated to supporting people with Fetal Alcohol Spectrum Disorder (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.
National FASD, founded in 2003, is a source for information on FASD to the general public, press and to medical and educational professionals. Our programmes are focused on promoting wellbeing for those with FASD and their families, providing materials for GPs, midwives, social workers, educators and creating cutting edge resources and experiences for people with FASD.
Seashell is a charity dedicated to providing a creative, happy and secure environment for children and young people with complex and severe learning disabilities which include little or no language abilities.
With the expertise of specialist teachers, care staff, on-site therapy team, assistive technologists, swimming teachers and sports coaches, students learn how to express themselves, engage with the world around them, become more independent and live safe, creative and fulfilling lives.